Part of the evening will feature
a special meeting between White Sox first base coach, Tim Raines, who has
lupus, and a brave 11-year-old boy who has been fighting lupus for two years.

This category is for world-wide (non-US and non-UK) nonprofit associations providing information and advocacy for people with Cerebral Palsy.

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palsy disorders

Lupus Foundation of Illinois Teams Up With the Chicago White Sox

As official Lupus Awareness
Night at U. LFI
assists with patient education by hosting monthly support groups, and provides
those with lupus the opportunity to experience activities and events that they
would not otherwise.
Even though lupus is more common in the U. than AIDS, sickle cell
anemia, cerebral palsy, multiple sclerosis, and cystic fibrosis combined , it
remains one of this nation's least known major diseases. LFI is the primary patient service organization in Illinois for
lupus patients and their families.

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5 million Americans today are
believed to have some form of autism.

(1) Autism Society of America (http://www.

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Cellular Field Friday to watch American League leader, the
Chicago White Sox take on the Seattle Mariners.lupusil.

Impact of Gastrointestinal Dysfunction in Autistic Children

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S. "The
disease should not be looked at as a life-altering obstacle. John's Mercy Medical Center.

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S. To learn more about lupus , please visit
http://www.

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There are 10,000 kids in Illinois with lupus, many of whom benefit from
LFI activities and programs.
Up to fifty percent of children with autism experience persistent GI
problems, ranging from mild to moderate degrees of inflammation in both the
upper and lower intestinal tract.

conditions interested

Free to Be helps kids be kids, and restores fun to their lives.
The August 5 White Sox game will not only give this special child a chance
to attend a baseball game, but will enable him to meet Raines and see that a
"normal life" is possible even for those with lupus.

terms advocacy

Lupus is a chronic, potentially
life-threatening autoimmune disease that can affect virtually any organ in the
body, especially the skin, joints, blood and kidneys.
"With autism growing at a rate of 10 to 17 percent per year, we recognize
the need to address issues directly affecting these patients ," says David
Duesenberg, MD, AACAP, staff psychiatrist at St.
"Although there is no known cure , early intervention and treatments hold
promise and provide hope for families living with autism .

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Connection Created by More Than Just Love for Baseball

CHICAGO, The Lupus Foundation of Illinois (LFI)
will be at U. I would
encourage all Sox fans to learn more about Lupus and the Foundation.

(1)

To find out more about the study, please contact Elizabeth Gansner, (314)
251-8890, Ext 28143.

nonprofit challenges

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For most families, lupus creates a financial strain, preventing
children from having resources to participate in after-school activities. "Living with Lupus has
not prevented me from living a normal and active life," said Raines.

About Lupus Foundation of Illinois
With approximately 65,000 lupus cases in Illinois, the Lupus Foundation of
Illinois (LFI) works diligently toward its mission to inform, educate and
promote understanding and awareness of lupus and to support those affected by
the disease. New Study to Evaluate Effect of an Investigational Drug on a Condition that
Affects Up to Fifty Percent of Children with Autism

ST. LOUIS, Mercy Health Research is one of twelve
trial sites selected to participate in a research study to evaluate an
investigational medication for persistent gastrointestinal (GI) dysfunction in
autistic children.

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The current study aims to determine the effect of an investigational drug
on GI function as well as assess the effect on autistic behavior.

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Autism is the most common of the Pervasive Developmental Disorders,
affecting an estimated 1 in 250 births (Centers for Disease Control and
Prevention, 2003).org)

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The disease is
enormously complex , vastly misunderstood, and often misdiagnosed.

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The Foundation offers patient education that
helps kids and their families understand what to expect with lupus. Due to
LFI's strong community commitment , it provides a variety of programs such as
educational meetings, support groups, online resources , and a toll-free
information and referral line that play an invaluable and life-enhancing role
in the lives of lupus patients.
The National Institute on Deafness and Other Communication Disorders
defines autism as a brain disorder that begins in early childhood and persists
throughout adulthood affecting three crucial areas of development:
communication, social interaction and creative or imaginative play.

interested disabilities

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Cellular Field, LFI will be present to raise awareness for the
illness that impacts 1.5 million Americans. Free to Be
is priceless because often those with lupus have extraordinarily high medical
costs. This means that as many as 1.

adults terms

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Raines is an active supporter of LFI.
The White Sox night is the premier event created through the Foundation's
Free to Be program, addressing the overall psychological, social and health
education needs of economically disadvantaged children with lupus .

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